Proteus Family Weekend 2009
Join us on 13-14 of June

Includes free family member tickets for Manchester United Stadium tour or flight on the Manchester Wheel, subsidised accommodation, Saturday evening social and Sunday morning 'pick and mix'. Features medical experts, research team members, practicalities - benefits, DLA, Special Educational Needs, etc, fun room for the children. The weekend finishes at 1.00pm with a buffet lunch. Call Sarah Gardiner on 01202 649627 to book/enquire.

Family 2007 Weekend, Bristol.

The 2007 family weekend took place in Bristol. Once again it was great to meet up with one another and to meet new families. We welcomed families from around the country, with some friends joining us from Ireland. Many families took up the offer of free family tickets for a day at Bristol zoo, whilst others opted for a visit to the SS Great Britain in Bristol harbour. Whichever was chosen, all had a great day and we swapped stories and caught up with each other's news in the evening. Sunday morning saw more members joining us and while the children took part in a Mad Science morning - lots of fun and VERY messy.... others heard talks by Dr Syed of Gt.Ormond St Hospital, Helen Young of St.Giles Hospice, Litchfield and an open question and answer session hosted by Professor John Harper of Gt.Ormond St and Head of our Medical Advisory Board. Once again, everyone got so much from the wekend....here is what a couple of families thought of their time with us...

"When Matthew was diagnosed with Proteus Syndrome, it was stressful and daunting as we had never heard of Proteus Syndrome and there was limited information available. Professor Harper and Jane Linward at GOSH told us about the Proteus Family Network U.K."

"No better way of meeting other people in the same boat than at the Family weekend. The most recent weekend was in Bristol and it was the first one we attended. It had a good balance of family time (we chose to go to the zoo), medical information from experts in their field and swapping stories with families in the same situation."

"We really enjoyed the weekend and our only regret is that we started feeling comfortable with the other families when it was time to go home."

"We look forward to the next weekend away."

"We are grateful to the organisers for a well-organised and informative weekend."