Welcome to the UK support group for families and individuals affected by Proteus syndrome. We hope that you will take some time to browse our pages and find out a bit about this rare syndrome and what we as a support group do. Don´t miss the latest news in our newsletter. You can also read a personal perspective on Proteus Syndrome in Your Stories.

Please visit our events section to see details on our upcoming 2009 Family Weekend - always a great chance to meet up with other families and share news and updates from our medical experts.

If you have any comments or would like further information, you can contact us at: info@proteus-uk.org

If you or your family wish to join the Proteus Family Network UK, simply download the PDF application form here

Are you an adult with Proteus Syndrome....? If so YOU can help.....